The way I see it:
The only way a person with ALS can survive this awful disease is to be surrounded by happiness, true love, compassion, kindness, understanding, laughter, joy.
ALS destroys the motor neurons, leaving you with a mind: bright and alert in an useless body. An announced slow death, the worst is: feeling the slow process.  Therefore, nothing like happiness, joy, beautiful moments to make the sun shine.
Hope science finds a cure !

and.... the sun shines...

It's been 4 months since I was officially diagnosed with ALS... how do I feel... I don't know. I've been told I need to save energy, but the way I see it I want to enjoy beautiful moments with my love ones. I want to laugh, I want to be happy. If it means I'll be tire...well... then I'll nap !
Some times I get the "afraid feeling" the.... "this isn't happening to me" the "why am I dragging to  walk like I'm carrying bricks" ? and then... "no, is not happening" but then, I have tons of reasons to smile and make the sun shine.