Dealing with Muscle Pain and Tremors - The ALS Association

Dealing with Muscle Pain and Tremors - The ALS Association

Your First Year with ALS - Face it Head On!

Garth Brooks- Friends In Low Places

Jenifer (2001)

My story Living with ALS

Run, Hug, LIVE, Courtesy of ALS Society of Canada

And the Sun is still shining

Save save save Energy ! it's what I'm told.... hey ! the sun fills me with energy the kind o f energy I need. I had the most amazing three weeks ... Camp Abuelita ! the three musketers: Elly. Chipy and me. It was just laughter, giggles, fun, joy,.... Saving energy is not going to give me the beautiful moments lived. We play hide and seek.... chipy always found us,,,, we run out of places to hide. We had picnics at the park... riding the scooter. Colored, went to ChuckyCheese, had our hmmmmm snacks ... behind mummy and daddy's back, here and there along with healthy food, of course.  Dressing, Awe what a model. Jumping in the pool. Going to the movie theater..BFG will never forget it.
Yes, I'm in the slow progression ride but if it's irreversible, just getting weaker, then why stop doing what makes me enjoy my life. I've decided, rain or not my sun will shine !

shining through the clouds but still shining

I've been creating beautiful memories ! how can I not ! beautiful people around me. Bibi, one of my favorites.. full of life, energy love. Makes me forget ALS is there.
I think a lot. Sometimes I feel fear of what's ahead, how am I going to get through this ? and then I realize it will all be in my mind to make my life enjoyable, above all, to accomplish it my mind needs to be stress free, calm in peace.

Life goes on

With joy, laughter and love everything is possible... moving forward

And no matter what my sun keeps shining

I've been thinking  ! it seems like it's really what I do :o) but I had thought 2015 has been one of my worst years. I'm holding so strongly to those sun rays.. asking my self "can I hold"? and then wow I have so much to be thankful for: real good friends; beautiful family; oh!!!! my grand kids.. make my days... the boys are on their way, so happy for them, and so proud ! best of the end of 2015: my son proposed to a wonderful beautiful sweet girl whom I have learn to love too. I wish them the very best.. Got to see my brothers and of course my sister is always with me, "thank you Betty" ! So everyone Happy New Years May the sun shine forever.

Creating Memories to make my sun shine forever

Beautiful People

My sun keeps shining... I couldn't be more grateful and Happy. My good friend Enoris gave a "Silk Party" for me. One of the most painful things I've faced with this relentless disease is not been able to work on my greatest project:  silk; creating, dreaming, living with silk. I sometimes wake up in the middle of the night, wishing I could just walk to my workshop and start working on silk..... it's not happening.. Since my last gallery display back in Feb 2014 "Carolyn Seiler and Friends" I kept inventory of products handpainted on silk... well... Enoris came up with a super idea, "the Silk Party" ! invitations went out... and the party was a success. It was like... back in my gallery days... What made me so happy is how "the girls" enjoyed and admired my work.  When I worked on silk, it was a "feast" I felt it, I lived it, I loved it. So Thank you my dear Enoris, you made my sun shine so bright even with rain

Time goes by ! It's been seven months since I heard Dr. Boylen's words "Motor Neuron Disease" /ALS.. fortunately slow progression... I wake up everyday and look at my toes... yes, I can move them... yes... things are changing, my movements are slower, but hey, who wants to rush.
And in everyday there is always something good.  I feel lucky and blessed. I have wonderful people in my life. One of them is Enoris, a beautiful friend with a great soul. I wish I had met her before but everyday is a good day for some one wonderful in one's life and for that I'm thankful.