I'm learning day by day. But to my surprise there is a handbook for ALS. Time frames vary for each one; how it starts vary; when you'll end up in a wheel chair vary; when you'd need to be fed vary, but the instructions are in the handbook. It will tell you how you would need to be care for but it doesn't tell you how to deal with feelings.  I'm not there yet, but I wonder how would I feel being caged in my own body. Would I still feel the sun shining through the rain ?