Try Harder... You can do it..

There is no such a thing with ALS/MND. How more useless can someone feel !

There is not getting better, there is no: " if  you try you'll be able to do it. " 

How can I make people understand ALS is a relentless condition and research is slow. 

I am eager to hug and be hugged and feel the warmth of an embrace, because one day sooner or later and I know is coming,  I wont be able to. My arms wont respond. I can't try,  who am I kidding ? Should I just call it "quits" and just wait 'till the time comes ?... I can't show myself as tough any more.... or should I ? that would be deceiving !

Let it be

I spend great part of my time brainstorming. I ask myself "How am I doing?"  What's going to happen ? How is it going to be ?   How do I hold on tight not to let go ?   How do I make it last ?  How do I stop the inevitable?  I want to use my time, I want to grasp the last drop of energy and live it to its fullest.... 

I want to stay Happy until my last breath.. I've learned there are beautiful things in life.... and I also learned...  laughter, friends...true friends  which I so long wished for and have, are priceless.

A friend told me..."sign of long life"  Please let it be...

Tire, Slow, Burden....