Creating Memories to make my sun shine forever

Beautiful People

My sun keeps shining... I couldn't be more grateful and Happy. My good friend Enoris gave a "Silk Party" for me. One of the most painful things I've faced with this relentless disease is not been able to work on my greatest project:  silk; creating, dreaming, living with silk. I sometimes wake up in the middle of the night, wishing I could just walk to my workshop and start working on silk..... it's not happening.. Since my last gallery display back in Feb 2014 "Carolyn Seiler and Friends" I kept inventory of products handpainted on silk... well... Enoris came up with a super idea, "the Silk Party" ! invitations went out... and the party was a success. It was like... back in my gallery days... What made me so happy is how "the girls" enjoyed and admired my work.  When I worked on silk, it was a "feast" I felt it, I lived it, I loved it. So Thank you my dear Enoris, you made my sun shine so bright even with rain

Time goes by ! It's been seven months since I heard Dr. Boylen's words "Motor Neuron Disease" /ALS.. fortunately slow progression... I wake up everyday and look at my toes... yes, I can move them... yes... things are changing, my movements are slower, but hey, who wants to rush.
And in everyday there is always something good.  I feel lucky and blessed. I have wonderful people in my life. One of them is Enoris, a beautiful friend with a great soul. I wish I had met her before but everyday is a good day for some one wonderful in one's life and for that I'm thankful.

Veterans Day

I was only 16 when my friends back in High School were being drafted to go to Vietnam. Some volunteered ... Once I was in my math class and Jeff Hill who sat next to me in that class was not there....nor the next day.. nor did I see him walk by my house..  Later I learnt he went to Vietnam. Never saw him again.

Joy, laughter, fun, happiness, love and more are ingredients to make the sun shine even if it's raining

I've had a fulfilling week ! Bibita, my loquita beautiful nice is in town  with the kids. Just watching them fills my day. I love her spirit, her energy. Oh yes, she has her hands full ! but she's always smiling. I know her sun will shine forever. She sure makes mine shine.

The ALS Association

The ALS Association

Eddy Arnold - Make The World Go Away (1966)

Hi out there ! gloomy out there ?  Not here... my Sun is shining

I feel I'm being rushed... and to be honest I won't let that happen. I know my limitations; I know what I can do and what I can not !  Yes.., I get tire easily... but then, that's why "naps" exist. I'm not going to stop enjoying the things I love to save energy. What's saving energy going to give me...? more days, more, years. We are all going to die some day.. sooner or later.
I've lived my life, I have three wonderful boys and they have filled my life and have given me beautiful lovely girls to share my life with and adorable grand kids...  What else can I ask for ? I have my Sister Betty and Brothers to laugh, argue, disagree with, but we grew up together and made the best we could out of out lives. Dad is in heaven watching over me and "Mami" is still with us. A great  lovely family. When we get together we laugh and have fun. Yes... is hard to drag the Sun to stay on top  shining.... but I'm holding it tight.

What is ALS?

The way I see it:
The only way a person with ALS can survive this awful disease is to be surrounded by happiness, true love, compassion, kindness, understanding, laughter, joy.
ALS destroys the motor neurons, leaving you with a mind: bright and alert in an useless body. An announced slow death, the worst is: feeling the slow process.  Therefore, nothing like happiness, joy, beautiful moments to make the sun shine.
Hope science finds a cure !

and.... the sun shines...

It's been 4 months since I was officially diagnosed with ALS... how do I feel... I don't know. I've been told I need to save energy, but the way I see it I want to enjoy beautiful moments with my love ones. I want to laugh, I want to be happy. If it means I'll be tire...well... then I'll nap !
Some times I get the "afraid feeling" the.... "this isn't happening to me" the "why am I dragging to  walk like I'm carrying bricks" ? and then... "no, is not happening" but then, I have tons of reasons to smile and make the sun shine.

Golden Thoughts: Dele Olanubi Quotes

Golden Thoughts: Dele Olanubi Quotes: "Be a light in the dark. Shine brightly for those who have lost their way in the storm. Use your story to help another person continue...

ALS - Hug