RADICAVA FAQ

RADICAVA FAQ: Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.

"Lay Down Beside Me" - Alison Krauss with John Waite

Homepage - ALS Association

Homepage - ALS Association: Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.

ALS Experts: Keep the Weight On

ALS Experts: Keep the Weight On: ALS Experts: Keep the Weight On

I feel a need to protect my Energy and enjoy life while I can

 I once watched Dr. William Tollefson giving a lecture years ago in Cocoa..about survival, energy, recovery, healing ... Years later I feel the need to grab onto my energy to enjoy  the years of life my Slow Progression with ALS is granting me... I have a beautiful family whom have filled my life and still do... but at my age.. and empty nest applies... Seniors go to the experience of facing an empty nest... I, on the other hand... experienced and empty nest in troubled waters... left the troubled waters and faced a different scenario..:. happy times and ALS...Time went by... life went on and suddenly out of the blue, lucky for me... life played tricks on me... made me enjoy life in a different way... what can I say... I'm faced in between ALS... happy times and empty nest... I'll be fine with an Empty nest because the birds flew to better places and grasped their own happiness... Happy times, oh  my oh my.. I'm facing it and I don't want to loose it.. ALS, no one can stop it... why drain my energy instead of saving energy.. 

"To protect your own energy, here are 18 permissions you should adopt to be healthy and have a good supply of personal energy.
  
 - To protect my energy, you are allowed by treating yourself first 

  - To protect my energy, you are allowed to protect yourself

  - To protect my energy, you are allowed to change beliefs

  - To protect my energy, you are allowed to believe in yourself 

  - To protect my energy, you are allowed to be committed to yourself first

  - To protect my energy, you are allowed to spend a day with yourself

  - To protect my energy, you are allowed to not to fulfill others expectations

  - To protect my energy, you are allowed to not share yourself

  - To protect my energy, you are allowed to not seek others validation

  - To protect my energy, you are allowed to do nothing

  - To protect my energy, you are allowed to spend time alone

  - To protect my energy, you are allowed to sleep in 

  - To protect my energy, you are allowed to find your voice and express pinions

  - To protect my energy, you are allowed to move forward

  - To protect my energy, you are allowed to embrace yourself

  - To protect my energy, you are allowed to change
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  - To protect my energy, you are allowed to be mindful

Homepage - ALS Association

Homepage - ALS Association: Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.

Trying to work on sculpture ! Disappointment

I had this brilliant idea of taking this course... requiring lots of hands dexterity... big mistake. Lost my money, came out frustrated and so disappointed.  To me disappointment is the worse feeling, however, I got a good lesson out of this experience.....  "know my limitations and not to try to do what I can no longer do"... Sadly.....nothing can be done but...... to look forward and find things I can do ! Enjoy life, be happy, love the important people in my life with all my heart, the one who makes me laugh, who flies me to the moon and back, who helps me play among the starts and find meaning in life.

Keith Urban - Making Memories Of Us

I Can and I will

What ever I set my mind to do.... I'll do

Blue and blue

Sometimes I feel blue, I feel I loose strength.... Do I walk with a strong image ? Everyone expects a lot from me. I'm doing the best I can to enjoy my life and be happy. I need this. Why do I need to be tested ? I'm physically independent ....yes I know my limitations and If  I say I'm going for my happiness, is because I know I can... and I will.  Sometimes I just need support, sometimes I just need someone to tell me everything is going to be fine.  Is it  I don't deserve this ? I sure believe I do. I need people to be happy for me. How can I ever sail out to reach my dream if I don't leave the shore ? Time is a luxury for me and I don't want to waist one minute of if.... however short, however long. And I will not ask myself, why ? why me ? It is what it is... it's for me to face and make the best out of it. I'm sure not missing my train.

A dream is just a dream

Dreams fade away.... dreams are never here to stay, trying to hold on to your dreams is painful at the end. Memories are real, so creating memories is better than dreaming. Be real

Better

My journey